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The Spoonie Struggle

Apr 28, 2021

Episode 5: Let's Talk About Sjogren's Syndrome

In this episode, we discuss all things Sjogren’s Syndrome. Sjogren’s Syndrome is an autoimmune disease that causes dry eye, dry mouth, fatigue, and joint pain. Additionally, it can cause damage to other organs. It is diagnosed via blood tests, eye tests, and dental...

Apr 26, 2021

Episode 4: Let's Talk Ehlers Danlos Syndrome

In this episode, we discuss all things Ehlers Danlos Syndrome. EDS is a group of usually inherited connective tissue disorders characterized by joint hypermobility, skin hyperextensibility, and tissue fragility. Symptoms vary, but can include widespread joint and muscle pain,...

Apr 21, 2021

Episode 3: Lewis Temple's story with Ehlers Danlos Syndrome

In this episode, guest Lewis Temple shares his story of living life with Ehlers Danlos Syndrome (EDS). He also has POTS, craniocervical and atlantoaxial instability, migraines, dislocations, trigger finger, and TMJ. It took him years to finally get a proper...

Apr 14, 2021

Episode 2: Jessica Temple's Story with Ehlers Danlos Syndrome

In this episode, host Jessica Temple shares her chronic illness journey. She discusses that her medical journey started at age 2, and finally got a formal accurate diagnosis in November 2020. She has a diagnosis of Ehlers Danlos Syndrome, with a ton of...

Apr 3, 2021

Episode 1: The Spoonie Struggle

In this episode, host Jessica defines what a "spoonie" is, as well as the name "The Spoonie Struggle." She discusses the purpose of and vision of the podcast. She also rants about everyone's favorite questions "what is your current pain level from 0-10?"