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The Spoonie Struggle

May 31, 2021

Episode 14: Let's Talk About Sickle Cell Disease

In this episode, we discuss all things Sickle Cell Disease. Sickle Cell Disease is an inherited red blood cell disorder in which there aren't enough healthy red blood cells to carry oxygen throughout the body. There are multiple types of the disease. Symptoms include...

May 26, 2021

Episode 13: Smooth Sailing Spoonie ER Visits With Guest Dr. Harvey Castro

In this episode, we discuss making ER visits more smooth sailing for spoonies and zebras. Guest Dr. Harvey Castro feels that it is important for the ER docs to spend adequate time with the patient, and for the patient not to have to tell their...

May 24, 2021

Episode 12: Let's Talk About Endometriosis

In this episode, we discuss all things Endometriosis. Endometriosis is a painful disorder where the tissue that typically lives inside the uterus begins to grow outside the uterus. Symptoms can include pain, urinary or bowel symptoms, fatigue, infertility, changes in...

May 19, 2021

Episode 11: Shayla Symone's Story With Ehlers Danlos Syndrome and Racial Discrimination

In this episode, we discuss Shayla Symone’s story with Ehlers Danlos Syndrome. She also has POTS, IBS, and Fibromyalgia. Shayla began to experience symptoms of EDS when she was in elementary school and was formally diagnosed in...

May 17, 2021

Episode 10: Let's Talk About Ankylosing Spondylitis

In this episode, we discuss all things Ankylosing spondylitis. Ankylosing spondylitis is a form of arthritis that affects the spine and other joints, causing chronic pain. It can also affect the eyes. It is thought to be genetic. Diagnosis is made vis clinical...