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The Spoonie Struggle

Jun 30, 2021

Episode 23: An Insider's Look At MAST Cell Activation Syndrome With Guest Dr. Jill Schofield

In this episode, Dr. Jill Schofield  discusses MAST cell activation syndrome. MAST cells are used to fight off foreign invaders and are present in all areas of the body, but most in the GI tract, genitourinary tract, skin, and...


Jun 28, 2021

Episode 22: Let's Talk About Complex Regional Pain Syndrome

Complex Regional Pain Syndrome is a condition defined by prolonged pain and inflammation following an injury to the arm or leg. Symptoms include constant or fluctuating pain after contact or use, changes in skin temperature, skin color, swelling of the affected...


Jun 23, 2021

Episode 21: Managing Chronic Pain With Dr. Linda Bluestein

In this episode, Dr. Linda Bluestein discusses Ehlers Danlos Syndrome, Fibromyalgia, and chronic pain. Dr. Bluestein noted that it took her over 40 years to get diagnosed with EDS, and once her symptoms caught up with her, she made a career shift to...


Jun 21, 2021

Episode 20: Let's Talk About Trigeminal Neuralgia

Trigeminal neuralgia is a chronic pain condition that affects the trigeminal nerves. Symptoms include bouts of facial pain, aching and burning in the face, and pain that gets worse over time. It is usually caused by disruption of function of the trigeminal nerve, aging,...


Jun 16, 2021

Episode 19: Monica Michelle's Story With EDS, CRPS, MCAS, and POTS

In this episode, Monica Michelle discusses her chronic illness story with EDS, MCAS, POTS, Fibromyalgia, CRPS, and more. Monica and Jessica go on a lot of fun soap-box rants about the state of healthcare and disability. They discuss the use of mobility...