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The Spoonie Struggle

Jul 28, 2021

Episode 28: David Einsohn's Story With Ankylosing Spondylitis

In this episode, we discuss David Einsohn’s story with Ankylosing Spondylitis. David started experiencing problems with his legs and back when he was almost 10. He started having difficulty breathing, weakness in his legs, lower back pain, and stiff hips....

Jul 21, 2021

Episode 27: Making Physical Therapy Work For Ehlers Danlos Syndrome with Guest Dr. Logan Swisher

In this episode, Dr. Logan Swisher discusses physical therapy and Ehlers Danlos Syndrome. EDS is a connective tissue disorder that affects the person’s whole body. Symptoms can range from mild to debilitating. Our joints...

Jul 14, 2021

Episode 26: Amanda Semenoff's Story of Living With Crohn's Disease

In this episode, Amanda Semenoff discusses her experience with Crohn’s disease. Misdiagnoses included psychiatric conditions, lupus, pregnancy, eating disorders, and stress. She found that once she had a formal diagnosis, doctors started to take her...

Jul 7, 2021

Episode 25: Alex Haut's Story with Ehlers Danlos Syndrome

In this episode, Alex Haut discusses her experience with growing up with Ehlers Danlos Syndrome, arthritis,  and ulnar nerve entrapment. She also has GI and liver issues. She was diagnosed by her pediatrician when she was in elementary school. She was shocked to...

Jul 5, 2021

Episode 24: Let's Talk About Crohn's Disease

Crohn’s Disease is one type of inflammatory bowel disease and differs by person. Symptoms include diarrhea, fever, fatigue, abdominal pain and cramping, blood in the stool, mouth sores, reduced appetite, weight loss, inflammation of the skin, eyes, and joints, inflammation...