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The Spoonie Struggle

Oct 20, 2021

Episode 40: Darren Radke's Experience Living With Lupus and Antiphospholipid Syndrome

 

In this episode, guest Darren Radke shares his experience living with Lupus and Antiphospholipid Syndrome. He also was diagnosed as a having a hippocampal cyst in his brain, an issue with a heart valve, and a lung issue. His symptoms...


Oct 13, 2021

Episode 39: The Ins and Outs of Antiphospholipid Syndrome With Guest Dr. Jill Schofield

In this episode, guest Dr. Schofield discusses Antiphospholipid Syndrome. APS is a complex multisystem autoimmune disease. It is often comorbid with Lupus. It can be primary or secondary. Females are more likely to have APS than...


Oct 6, 2021

Episode 38: Updates, Crises, and Overwhelm

In this episode, Jessica gives updates on her life and the life of her family. She discusses updates on her health conditions and recent surgery, crazy stressors, and mental health difficulties that accompany autism. She discusses how hard it is to get good medical care and how...


Sep 29, 2021

Episode 37: Treatment and Management of Ehlers Danlos With Guest Dr. Alissa Zingman

In this episode, Dr. Alissa Zingman discusses management and treatment of Ehlers Danlos Syndrome. Dr. Zingman started to have symptoms of EDS in elementary school, with stomach aches and heel pain. She was very athletic and danced, but...


Sep 22, 2021

Episode 36: Kim "Kid" Curry's Story of Living With Multiple Sclerosis

In this episode, Kim "Kid" Curry discusses his experience with Multiple Sclerosis. Early on in his career, he started feeling stinging sensations in his legs, but he wrote it off as possibly being bitten by fire ants. Later, his eyes were an issue, he...